{"id":1879,"date":"2017-02-10T16:23:22","date_gmt":"2017-02-10T16:23:22","guid":{"rendered":"http:\/\/tvndy.ca\/?p=1879\/"},"modified":"2018-11-01T18:24:59","modified_gmt":"2018-11-01T18:24:59","slug":"webcast-archive-nursing-home-residents-call-for-community-based-care","status":"publish","type":"post","link":"https:\/\/tvndy.ca\/en\/2017\/02\/webcast-archive-nursing-home-residents-call-for-community-based-care\/","title":{"rendered":"Webcast archive: Nursing home residents call for community-based care"},"content":{"rendered":"<p><iframe loading=\"lazy\" width=\"1180\" height=\"664\" src=\"https:\/\/www.youtube.com\/embed\/aShhwkA6Nik?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen><\/iframe><\/p>\n<p>In this episode of <em>Euthanasia &amp; Disability<\/em>, Amy Hasbrouck and Christian Debray discuss:<\/p>\n<ul>\n<li>Nursing home residents in Qu\u00e9bec organize to claim their right to community options<\/li>\n<li>FAQ:\u00a0 Aren\u2019t we making people endure terrible pain and suffering if we don\u2019t allow doctors to help them die?<\/li>\n<\/ul>\n<p>Please note that this text is only a script and that our webcast contains additional commentary.<\/p>\n<p><strong>NURSING HOME RESIDENTS IN QU\u00c9BEC ORGANIZE TO CLAIM THEIR RIGHT TO COMMUNITY OPTIONS<\/strong><\/p>\n<ul>\n<li>A group of nursing home residents in Qu\u00e9bec has organized to provide mutual support and to call for community-based care options.<\/li>\n<li>L\u2019Alliance Qu\u00e9b\u00e9coise des citoyens h\u00e9berg\u00e9s (the Qu\u00e9bec Alliance of Citizen-Residents) was established in December to give a voice to the 3,500 people with disabilities under age 65 who live in nursing homes and hospitals in Qu\u00e9bec.\u00a0 The founder, Jonathan Marchand, states on the group\u2019s Facebook page:<\/li>\n<li>\u201cWe are currently being forced into institutional care due to the lack of home support services tailored to our needs. This has serious human, social and financial consequences. The current situation pushes victims to suicide to avoid institutionalization.\u201d<\/li>\n<li>TVNDY documented this problem in 2015 when we interviewed Gabriel Bouchard, who starved himself to death in large part because of a lack of employment and social supports.\u00a0 Other disabled people have died after refusing treatment, and sought euthanasia because they were forced to live in institutions.<\/li>\n<li>The group states that its mission is to:\n<ul>\n<li>\u201cDefend our rights and liberties,<\/li>\n<li>Discuss and resolve administrative problems,<\/li>\n<li>Develop residential resources adapted to our needs,<\/li>\n<li>Denounce the lack of home care programs,<\/li>\n<li>Fight for an environment adapted to our needs,<\/li>\n<li>Demand care that is appropriate and personalized,<\/li>\n<li>Provide mutual support.\u201d<\/li>\n<\/ul>\n<\/li>\n<li>AQCH members Jonathan Marchand and Daniel Pilote have made media appearances discussing the situations that forced them into institutional care, and the social priorities that deny people with disabilities the liberty to live independently in the community.\u00a0 The group invites those living in nursing homes and other residential facilities to provide testimonials about their experience living in institutions.<\/li>\n<li>For more information about the Qu\u00e9bec Alliance, contact Jonathan Marchand at 1-866-597-5485 or email support@aqch.info.<\/li>\n<\/ul>\n<p><strong>FAQ:\u00a0 AREN\u2019T WE MAKING PEOPLE ENDURE TERRIBLE PAIN AND SUFFERING IF WE DON\u2019T ALLOW DOCTORS TO HELP THEM DIE?<\/strong><\/p>\n<ul>\n<li>Although physical pain is often cited as the main reason for allowing assisted suicide, pain is rarely an important factor when people ask to die.\u00a0 Only 25% of people who ask for assisted suicide in Oregon list \u201cpain or concerns about pain\u201d as the reason they want to die.\u00a0 In fact, physical pain can almost always be controlled.<\/li>\n<li>Many people have watched a loved one die in pain without realizing that this outcome is dictated by the medical system.\u00a0 Doctors have only a few hours of training in pain management in their entire medical education, are unaware of the wide range of pain-control methods, and are often afraid of using narcotics to ease pain.\u00a0 Illnesses and conditions that can\u2019t be \u201ccured\u201d are a problem for a health care system that is focused on results.\u00a0 Finally, only a small percentage of the population has access to effective palliative care.<\/li>\n<li>When people talk about \u201csuffering\u201d they often mean the grief that comes with any major loss in life, such as losing the ability to walk, or the loss of a spouse or child.\u00a0 With encouragement and support, it\u2019s possible to pass through this grief to feelings of peace and acceptance.<\/li>\n<li>As well, dealing with unresolved personal or family issues can bring relief from anxiety and grief.<\/li>\n<li>Finally, depression usually underlies suicidal feelings, whether the person has a terminal illness, a disability, or is able-bodied.<\/li>\n<li>Another kind of \u201csuffering\u201d has to do with becoming disabled.\u00a0 In Oregon, the reasons people give most often for asking for assisted suicide include: losing the ability to do favorite activities (89%), becoming dependent (91%), feeling like a burden (41%), loss of dignity (78%) losing control of bodily functions (48%).\u00a0 Yet with architectural access and consumer-controlled home-based services, people with disabilities can stay active, integrated and in control of their lives.<\/li>\n<li>People with disabilities worry that these disability-related reasons have become widely accepted as good enough to allow assisted suicide.\u00a0 This is manifest in the widely-held belief that it is better to be dead than disabled.<\/li>\n<\/ul>\n   ","protected":false},"excerpt":{"rendered":"<div class=\"entry-summary\">\n<div class=\"entry-summary\">\nThis week, we discuss the demand from younger Quebec nursing home residents for community-based care.\n<\/div>\n<div class=\"link-more\"><a href=\"https:\/\/tvndy.ca\/en\/2017\/02\/webcast-archive-nursing-home-residents-call-for-community-based-care\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &ldquo;Webcast archive: Nursing home residents call for community-based care&rdquo;<\/span>&hellip;<\/a><\/div>\n<\/div>\n<div class=\"link-more\"><a href=\"https:\/\/tvndy.ca\/en\/2017\/02\/webcast-archive-nursing-home-residents-call-for-community-based-care\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &ldquo;Webcast archive: Nursing home residents call for community-based care&rdquo;<\/span>&hellip;<\/a><\/div>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[92],"tags":[175,121,97,40,98,101,118],"class_list":["post-1879","post","type-post","status-publish","format-standard","hentry","category-webcast-archive","tag-chsld","tag-euthanasia-disability","tag-pain","tag-quebec","tag-suffering","tag-suicide","tag-webcast","entry"],"_links":{"self":[{"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/posts\/1879","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/comments?post=1879"}],"version-history":[{"count":4,"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/posts\/1879\/revisions"}],"predecessor-version":[{"id":3606,"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/posts\/1879\/revisions\/3606"}],"wp:attachment":[{"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/media?parent=1879"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/categories?post=1879"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/tags?post=1879"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}