{"id":1572,"date":"2015-04-17T19:04:29","date_gmt":"2015-04-17T19:04:29","guid":{"rendered":"http:\/\/tvndy.ca\/?p=1572\/"},"modified":"2018-11-08T00:55:34","modified_gmt":"2018-11-08T00:55:34","slug":"webcast-archive-citizens-with-disabilities-ontario-presentation","status":"publish","type":"post","link":"https:\/\/tvndy.ca\/en\/2015\/04\/webcast-archive-citizens-with-disabilities-ontario-presentation\/","title":{"rendered":"Webcast archive: Citizens with Disabilities Ontario presentation"},"content":{"rendered":"<p><iframe loading=\"lazy\" width=\"1180\" height=\"664\" src=\"https:\/\/www.youtube.com\/embed\/ufbKkrzZT4s?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen><\/iframe><\/p>\n<p>In this episode of <em>Euthanasia &amp; Disability<\/em>, Amy Hasbrouck and Christian Debray give a presentation about their work with TVNDY.<\/p>\n<p>Please note that this text is only a script and that our webcast contains additional commentary.<\/p>\n<p><strong>REHEARSAL FOR PRESENTATION<\/strong><\/p>\n<ul>\n<li>On Sunday, April 26, at 3 p.m. ET Citizens with Disabilities Ontario is sponsoring an online workshop to discuss assisted suicide. You can find a link on our facebook page to sign up.<\/li>\n<li>Today we offer a preview of that presentation, by way of a dress rehearsal.<\/li>\n<\/ul>\n<p><strong>Definitions<\/strong><\/p>\n<ul>\n<li>Palliative care \/ palliative sedation<\/li>\n<li>Refusal \/ withdrawal of treatment<\/li>\n<li>\u201cDo not resuscitate\u201d orders<\/li>\n<li>Assisted suicide<\/li>\n<li>Euthanasia<\/li>\n<\/ul>\n<p><strong>Euphemisms \u2013 designed to make it more acceptable<\/strong><\/p>\n<ul>\n<li>\u201cMedical aid in dying\u201d<\/li>\n<li>\u201cDeath with dignity\u201d<\/li>\n<li>Merger \/ evolution of group names<\/li>\n<\/ul>\n<p>Hemlock society + Compassion in Dying = Compassion &amp; Choices<\/p>\n<p><strong>History of disability opposition to AS\/E In the U.S.<\/strong><\/p>\n<ul>\n<li>1983, Elizabeth Bouvia<\/li>\n<li>Give me liberty or give me death cases \u2013\n<ul>\n<li>Quads in nursing homes, D. Rivlin, L. McAfee, K. Bergstadt<\/li>\n<li>Won the right to refuse treatment, have comfort care<\/li>\n<li>McAfee got out, changed his mind.<\/li>\n<\/ul>\n<\/li>\n<li>Kevorkian trials, NDY is born<\/li>\n<\/ul>\n<p><strong>Reasons people give for asking for AS\/E \u2026<\/strong><\/p>\n<ul>\n<li>Loss of autonomy<\/li>\n<li>No longer able to do things they enjoy<\/li>\n<li>Perceived loss of dignity<\/li>\n<li>Feeling like a burden<\/li>\n<li>Pain or fear of pain<\/li>\n<\/ul>\n<p><strong>The Disability Rights Arguments<\/strong><\/p>\n<ul>\n<li>Assisted suicide is discriminatory: non-disabled people get suicide prevention, PWDs are helped to kill themselves.\n<ul>\n<li>Social devaluation \u2013 better dead than disabled<\/li>\n<li>Suicide is a rational choice.<\/li>\n<\/ul>\n<\/li>\n<li>Choice is an illusion: There can be no free choice to die while people with disabilities have no choice in where and how they live.<\/li>\n<li>It\u2019s unnecessary: Anyone can commit suicide or refuse medical treatment and have palliative sedation.<\/li>\n<li>Safeguards don\u2019t work: Safeguards do not prevent non-eligible people from being killed.\n<ul>\n<li>Evidence appears to conflict\n<ul>\n<li>Studies of doctors reports show no problem<\/li>\n<li>Laws designed to hide information<\/li>\n<li>Retrospective examination of deaths shows problems.<\/li>\n<\/ul>\n<\/li>\n<li>\u201cIt won\u2019t happen here\u201d<\/li>\n<\/ul>\n<\/li>\n<li>The needs of a few to plan their death v. the risk to many more of coercion to accept AS\/E.<\/li>\n<li>We don\u2019t need to die to have dignity!<\/li>\n<li>We need help to live, not to die!<\/li>\n<li>Suicide prevention for all!<\/li>\n<li>Disability is not a fate worse than death.<\/li>\n<\/ul>\n<p><strong>Meanwhile, north of the border\u2026<\/strong><\/p>\n<ul>\n<li><em>Nancy B <\/em>\u2013 Established the right to refuse treatment (1992)<\/li>\n<li><em>Rodriguez<\/em> \u2013 was the gold standard (1993)<\/li>\n<li>Legislation &amp; Commissions \u2013\n<ul>\n<li>12 bills in parliament,<\/li>\n<li>Latest, bill C-384 defeated 226-59 in 2010<\/li>\n<\/ul>\n<\/li>\n<li>Qu\u00e9bec process &amp; statute\n<ul>\n<li>2009 Qu\u00e9bec commission \u2013 Dying with dignity<\/li>\n<li>Living with Dignity \u2013 59% people don\u2019t want AS\/E.<\/li>\n<li>March, 2012 Commission recommends\n<ul>\n<li>palliative care<\/li>\n<li>\u201cMedical aid in dying\u201d = euthanasia<\/li>\n<\/ul>\n<\/li>\n<li>January 2013, legal panel says \u201cif you call it medical care, it\u2019s OK\u201d<\/li>\n<li>June 2013 Bill 52 introduced \u2013 would allow euthanasia.<\/li>\n<li>June 2014 Bill 52 is adopted by QC National Assembly<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><strong><em>Carter<\/em><\/strong><strong> case<\/strong><\/p>\n<ul>\n<li>BC Supreme Court \u2013 Justice Smith\n<ul>\n<li>400-page decision<\/li>\n<li>Protect \u201chypothetical patients from hypothetical harm\u201d<\/li>\n<\/ul>\n<\/li>\n<li>Appeals Court\n<ul>\n<li>Lower court didn\u2019t have the right to revisit the Rodriguez decision; <em>stare decisis<\/em><\/li>\n<\/ul>\n<\/li>\n<li>Supreme Court\n<ul>\n<li>\u201cphysician assisted death\u201d<\/li>\n<li>Irremediable medical condition (illness or disability)<\/li>\n<li>Enduring suffering<\/li>\n<li>Intolerable to the person<\/li>\n<\/ul>\n<\/li>\n<li>Takes effect a year from the decision; parliament must act, or not.<\/li>\n<li>Reasoning based on inability to commit suicide, but eligibility not so limited.<\/li>\n<li>Cites European evidence when it agrees, discounts European evidence when it disagrees.<\/li>\n<\/ul>\n<p><strong>Safeguards<\/strong><\/p>\n<ul>\n<li>NCD (1997, 2005) and Endicott report (2003)<\/li>\n<li>\u201ceffective safeguards are unworkable\u201d<\/li>\n<li>AS\/E are, by definition, discriminatory.<\/li>\n<li>Experience of BeNeLux countries show practical slippery slope.<\/li>\n<\/ul>\n<p><strong>Strategies for avoiding the worst damage<\/strong><\/p>\n<ul>\n<li>Reduce requests by removing the causes<\/li>\n<li>Narrow eligibility requirements<\/li>\n<li>Create a formal, detailed process\n<ul>\n<li>More detailed evaluation<\/li>\n<li>Must go before a court for eligibility and approval<\/li>\n<\/ul>\n<\/li>\n<li>Take the doctors and interested parties out of the process<\/li>\n<\/ul>\n<p><strong>NEWS BRIEFS<\/strong><\/p>\n<ul>\n<li><strong>Bills allowing assisted suicide<\/strong> in Nevada and Connecticut were defeated. In Connecticut, the bill didn\u2019t have the support for a vote in the judiciary committee.\u00a0 In a similar vein, the chair of the Health and social services committee in Nevada decided not to look at the assisted suicide bill that was filed this year.\u00a0<strong>But a bill to legalize <\/strong>assisted suicide was filed in North Carolina this week.<\/li>\n<\/ul>\n<ul>\n<li><strong>Black-market baths \u2013<\/strong> This week, we learned of a common practice in long term care facilities in Qu\u00e9bec where residents pay attendants under the table for a second bath each week. According to articles, the minister of health and social services was warned about the practice in 2011, but they did nothing. Following the revelation, Health Minister Gaetan Barrette forbade the practice, saying \u201cpersonal hygiene doesn\u2019t require that each person have a bath every day.\u201d\u00a0 However he did not address the actual problem; that the demand for two baths per week expresses the will of the residents.<\/li>\n<\/ul>\n   ","protected":false},"excerpt":{"rendered":"<div class=\"entry-summary\">\n<div class=\"entry-summary\">\nThis week, we present a &#8220;rehearsal&#8221; of our presentation on assisted suicide.\n<\/div>\n<div class=\"link-more\"><a href=\"https:\/\/tvndy.ca\/en\/2015\/04\/webcast-archive-citizens-with-disabilities-ontario-presentation\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &ldquo;Webcast archive: Citizens with Disabilities Ontario presentation&rdquo;<\/span>&hellip;<\/a><\/div>\n<\/div>\n<div class=\"link-more\"><a href=\"https:\/\/tvndy.ca\/en\/2015\/04\/webcast-archive-citizens-with-disabilities-ontario-presentation\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &ldquo;Webcast archive: Citizens with Disabilities Ontario presentation&rdquo;<\/span>&hellip;<\/a><\/div>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[92],"tags":[245,95,121,96,98,118],"class_list":["post-1572","post","type-post","status-publish","format-standard","hentry","category-webcast-archive","tag-bill","tag-dignity","tag-euthanasia-disability","tag-safeguards","tag-suffering","tag-webcast","entry"],"_links":{"self":[{"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/posts\/1572","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/comments?post=1572"}],"version-history":[{"count":4,"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/posts\/1572\/revisions"}],"predecessor-version":[{"id":3813,"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/posts\/1572\/revisions\/3813"}],"wp:attachment":[{"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/media?parent=1572"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/categories?post=1572"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/tvndy.ca\/en\/wp-json\/wp\/v2\/tags?post=1572"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}